Recent CLL Articles
Learn about new financial assistance and COVID resources for those living with CLL (chronic lymphocytic leukemia) and those caring for someone who is.
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with you. Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and immunotherapy (chemoimmunotherapy) grouping of fludarabine, cyclophosphamide, and rituximab, known as FCR.
I recently learned about a new pilot program from my friends at the CLL Society called CLL Society Expert Access™. This important pilot program coordinates free second opinions with CLL experts for CLL patients who have not had or have not been able to secure such access.
In addition to healthy lifestyle activities, a powerful response to counter the fear of cancer recurrence is to be grateful, mindful, hopeful, and present—and apply the emotional intelligence to ‘respond’, but not ‘react’, to the negative words or actions of others. The key is to recognize but filter out negative thoughts—your own, and those thoughts and comments of others.
Whether patients refuse standard conventional cancer treatment or opt for other modes and methods of ‘cure’ and healing, the fact remains that their exposure to content that is poorly sourced and ill-informed (at best), or maliciously crafted and disseminated (at worst), impedes intelligent decision-making. ecisions made based on such content can, and do, lead to harmful and even fatal consequences. Because alternative cancer care can kill.
The CLL Society is arguably the best place on the web to learn about all things CLL–the latest science, educational programs, clinical trials, and treatment. Dr. Brian Koffman, a CLL survivor, co-founded the CLL Society. He is a highly respected, leading advocate for the CLL community.
In my new book, n of 1, I tell a story of maintaining control—my brand of maintaining control—when at an extremely low point.
Chemotherapy is imperfect—most drugs are. But I absolutely support its use for cancer treatment when called for as the approved standard of care, when there is solid potential to ensure a durable remission.
My story, n of 1, needed to be delivered responsibly, accurately, and authentically. To the extent possible, it needed to be beyond reproach. Let me explain.
On Thanksgiving Day 1991, three months after my diagnoses of leukemia, I laid in a hospital bed at GW University Hospital in Washington, D.C. My spleen was removed the prior day.